I was brought to blogging (in tears), by a Ted Talk.
Key Concepts: vulnerability and shame.
- Basically … I have Bilateral Thoracic Outlet Syndrome, Cervical Radiculopathy, and Neuroborreliosis, or Neurological Chronic Lyme Disease [CLD].
- I (therefore) manage chronic pain on top of chronic pain and chronic “brain fog“, among other things.
- I have CLD because at some point in my life I was unknowingly bitten by a tick. Since the tick was undiscovered / not removed promptly, I contracted Lyme Disease along with multiple other co-infections which when left untreated, can travel through the body and brain, doing major damage to organs and the Central Nervous System along the way.
- Lyme Disease becomes Chronic when symptoms have been present for over a year and have effected the nervous system. (note: major paraphrase of the full-on definition)
- 30 Doctors since 02/15/13
- 22 different diagnoses
- $75K+ paid OOP in medical related expenses
- 2 major surgeries
- Over 6″ of (surgical) scarring on my neck and collarbone
- attempted suicide on 6-29-16, yep.
- threat of suicide a few months later, landing me back in the crazy house. Yep.
- court-worthy medical malpractice case
- # of ribs I have had surgically removed as a possible fix
- # of times I usually leave the house (not for therapy) each week
- 250 – the approximate amount of documents I’ve had to fill out justifying my circumstances
- 12 dates with an X-ray machine, 2 MRIs, 2 EMGs, 7 epidurals, 6 facet injections, 2 Physical Therapy rounds
- 212 prescriptions filled
- 10% improvement